I am still amazed at the amount of people that read
these blog entries. This time as I
write, the diversity and caliber of people who who may be reading this weighs
heavily on my mind. How is my
grammar? Am I saying anything that might
offend? I’m just a mom! But in the end, I can’t think about those
things.
I had to remind myself that this blog is first and
foremost a means to record down my thoughts, to remember how I was feeling when
I am through this time of life, and to try and work out my feelings…I don’t
know, I just feel compelled to write it all down, I don’t really know why. I also don’t know why I am crazy enough to
let others peek into my heart, as well as the good the bad and the ugly of our
family life, yet I have felt guided to do it and for the most part it has been
a positive experience.
So if you still want to read on…I suppose this is my
warning that I am tired, my feelings are raw, and my mind is swirling with
thoughts that may be right on, or they may be way off track. It is what it is, but rest assured that it
will be real.
How are we all doing with OCD treatment these days? I think we all feel the same way:
This is hard!
The treatment and the people are so so good, but kicking
OCD is hard. I don’t mean a little bit
hard, I mean REALLY hard…the kind of hard that you see others facing and hope
it will never be you. The kind of hard
that you think “I could never do that in a million years,” but then you are
forced to do it and you can’t believe you are actually doing it. The kind of hard that finds you on the
bathroom floor crying your guts out in secret so that no one knows you have
temporarily lost your resolve, because you know that if you lose it, others
might too and you have to be strong for them.
The kind of hard that teaches you how to lean on the Lord completely and
walk by faith every day. And that’s just
me, I’m sure it’s much much harder for Chloe.
It is terrible and glorious all at the same time.
This is the first time that both John and I have tackled
a huge trial with complete understanding of the Savior’s atonement and the
knowledge that “We can do all things through Christ which strengtheneth us.” It’s the first time I have solely depended on
the Lord and His strength and actually trusted that it will work and that He is
really there and that He will help me. I
can testify that He has, and He does and most of the time it doesn’t really
feel that hard when you are lifted by your Savior.
But I’m still just a human being…a very flawed one at
that. Unlike my rock-solid husband, sometimes
my faith wavers, or my faith is strong but my mind body and spirit are just
plain old tired. My tiredness has even
affected my coveted scripture study time, and instead of studying I have found
a new means of comfort by listening to hymns as I study the words. When I feel depleted this will always fill me
with enough peace and strength to tackle a new day.
I’m sure a lot of this tiredness comes from the additional
demands of life lumped on top of OCD treatment.
At least one person in the family has been ill since before
Thanksgiving, one after another, over and over.
Husband, children…even the two dogs and the cat have been very sick with
both colds and stomach bugs. Cleaning up
vomit has become such a constant part of my daily life that I even clean up vomit
and excrement in my dreams. By some
miracle I haven’t gotten sick with anything, although I like to attribute my
robust immune system to a few things I am doing, which I will include in my “Favoritethings” post.
Throw in some lack of sunlight, colder temps., cabin
fever and a van that keeps breaking down and I am feeling very grumpy these
days – very grinchy which is sad because Christmas can be such a wonderful time,
but this year it has been the worst involuntary part time job I’ve ever had. To be honest, I’m glad Christmas is
over.
I think my problem is that with our new situation - having stripped away everything that isn’t
important and just focusing on the basics – I looked at Christmas through the
lens of a new perspective and I didn’t like what I saw. I felt that this year the Christmas hubub detracted from the Spirit of Christ in
my home. I felt like our home was more
focused on the Savior before: without all of the Christmas expectations and
crowds, sales, shopping and traffic, stress and wrapping paper and neighbor
gifts, Christmas cards (which I didn’t do this year for the first time
in….forever!) traditions, cookies, too much sugar and not enough sleep leading
to bad child behavior and multiple meltdowns….oh yeah, and Santa.
After having just simplified my life a month earlier,
the extra Christmas stuff was plain old hard to take in. Thinking of a well known General Conferencetalk by Elder Uchtdorf on Simplifying…it felt like I was staying up all night
to hand sew the dumb quilt that didn’t matter when really the message and the
lesson should have been the focus.
So those are my feelings about Christmas this year. It just made things waaaay harder for
me. I’m sure if you talk to my kids they
will tell you it was magical and they are so happy with their new toys and gadgets. I on the other hand am just working on
recovering from it all. I know, “bah
humbug.”
And now I am done with my rant about Christmas.
On to Chloe’s treatment progress: It’s frustratingly slow, like a game of chutes
and ladders with slow climbing forward progress and then rapid slides backwards
that take her all the way back to the bottom.
Thank goodness for the amazing people at the OCD and Anxiety TreatmentCenter. I’m so grateful for the
knowledge and tools that they are giving us, and for their support. They “get it”…in a big way. They all have loved ones with OCD or they
have beat it themselves. It doesn’t make
it any easier but it’s very comforting to talk to others that “get it.” I have never felt so much kindness and caring
from medical professionals in my entire life.
They are exceptional.
Basically, what’s difficult is the frustration of asking
and counting on an emotionally unwell hormonal pre-teen girl to do hard, hard
things and walk through the fire from an already low place.
By the time we sought outpatient treatment, we were
already at the end of our rope. I think
we all mistakenly thought, “Okay, she’s in treatment now. We can take a breath and the worst is over. We’ve known rock bottom and everything will be
uphill from here.”
Wrong. So wrong.
I think all of us have been at that point where we
thought it was all we could do just to get from point A to point B. And then when we exhaustedly collapsed onto
point B were asked to then hike uphill to point C. That is the point where we all face a big
decision, do we want to give up or do we want to dig deep and claw our way up
to point C? I think Chloe is still not
so sure. It’s hard for her to believe
that she will be better when the process of walking through the fire is so
unpleasant.
Exposure therapy works by helping the sufferer approach
the thoughts, or feelings that cause anxiety and trauma that they have spent
their entire lives trying to avoid because of the distress they cause. From my own gospel perspective, it’s the
principle of strength and growth through opposition in action. When faced with an uphill battle, we can
choose to run and hide, stand still and don’t move, or get to work and walk
through the fire.
Her counsellor likens it to physical therapy for the
brain. She has a physical illness that
has weakened a part of her body, and just like a person with a spinal injury
has to do the daily and unrelenting hard work, and painful, exhausting physical
therapy exercises to strengthen the muscles in their body so that they can walk
normally again, Chloe has to do the same thing, only she is strengthening an
area of her brain.
I’ve been thinking a lot about my own learning curve
when it comes to walking through the fire.
It took me a long time to realize that the path to wellness and
happiness always requires the hard work and facing the pain to get there. If I want to be physically well, I have to
eat the yucky vegetables and exercise my butt off. If I want to have a solid relationship with
the Lord and have the Holy Spirit to be with me, I have to put in the work
through prayer, fasting, and scripture study.
If I want to have a good relationship with my spouse or children, I have
to keep working at it…communicate, give them time, plan date nights and do
activities together. If I want to be
mentally healthy I have to experience the processes of grief and sadness in
order to heal. Running away doesn’t
work. Standing still doesn’t work
either. Both are stifling and bring
their own kind of unrelenting misery.
I look around and see so many “running away” or “standing
still” shortcuts to try and escape the pain and hard work, some of which I have
tried myself…the temporary highs of drugs, the misuse of food, overindulging in
activities, sexual addictions and fantasies, the buzz of a smoke, the escape
though alcohol, and sometimes regrettably people even chose to escape through
taking their own life.
The false happiness, or pleasure or numbness or whatever
we are seeking is only temporary and the unpleasant feelings and pain will
always come right back until we sometimes become dependent on those shortcuts
in order to function alongside the feelings. And then they control us.
I’ve learned that conditions such as stress, loneliness,
frustration, anger, shame, anxiety, and hopelessness will always be a part of
life. I can’t escape them….I could try
by using shortcuts but if I want to be healthy in my mind, body and spirit then
walking through the fire is always required to get to the other side.
This is what I want to tell Chloe, and anyone else who
may be facing their uphill battle.
Walking through the fire hurts.
And it’s scary, and overwhelming.
But I have learned that we don’t EVER have to do it alone. It is so much more manageable when we have an
entire Godhead that intimately know us better than we even know ourselves to
help us and give us strength we wouldn’t normally have on our own.
I don’t think it’s a coincidence
that I ran across this scripture the other day as I have been pondering these
things:
Isaiah 43:2-4
2 When thou passest through the
waters, I will be with thee; and through the rivers, they shall not
overflow thee: when thou walkest through the fire, thou shalt not be burned;
neither shall the flame kindle upon thee.
3 For I am
the Lord thy God, the Holy One of Israel, thy Saviour: I gave Egypt for
thy ransom, Ethiopia and Seba for thee.
4 Since
thou wast precious in my sight, thou hast been honourable, and I have loved
thee: therefore will I give men for thee, and people for thy life.
But what 12 year old really knows how to apply this? It took me over 30 years. All I can do is continue to love her,
encourage her, testify, teach and lead by example.
All of us want happiness for those we love, and we want
as little pain for them as possible. The most difficult challenge for me is
being in the position where I am at odds daily with my formerly sweet and
obedient daughter, because I am seen as the bad guy for forcing her to do the
things I know will help her get better, but that are most unpleasant for
her. Therapy is hard work, it is boring,
and painful, and scary, and exhausting. It
is hard to believe that something better is at the end of the uncomfortable
process. Helping Chloe through this
process while continuing my usual life challenges has tested my parenting skills,
my resolve and my role as a mother to the utmost limits.
I may make lots of mistakes and have lots of meltdowns,
vent out of frustration or even lash out in anger because I’m depleted, but
rest assured I will get up every day and keep trying because I know that I have
access to the powers of heaven that if accessed, will allow me to do things I
never thought I could do.
People always ask me how homeschooling is going. I have been so surprised by this journey, and
how wonderful homeschooling is. Not to
say it’s been all roses and butterflies…but homeschooling has been a mostly good
experience mixed with a little bit of difficult, in comparison to Jr. High
which was for us mostly difficult, mixed with a little bit of good. I plan to post soon with more details about what
we are doing.
I hope that as I keep plugging along, you can find the
strength to keep plugging along too.
Thank you again to those who reach out….your support and encouragement has
been just what we’ve all needed.
Happy New Year to each of you, and we love you.